Sad News

Albert self-portraitA while back I had written in this blog about the experience of my son’s lung transplant. I don’t much feel like writing this post, but in the interest of following up the story, I am.
Albert lost his 35-year battle against Cystic Fibrosis this past week. He passed away in Pittsburgh at the same hospital he had received his new lungs in.
He had been in the hospital for nearly the past six months. Problems with lung infections caused the new lungs to present rejection symptoms. The cocktail of drugs being used to fight both the infections and the rejection took their toll on his kidneys and he experienced kidney failure. Eventually, they reached the point where if they treated the infection aggressively, they would lose the battle against rejection and if they treated for the rejection, the infection would get worse.
His brother and I visited him and were on the way there again when the news arrived. He had refused a ventilator and accepted his end with courage and grace.
He told his brother, Frank, who is also a CF patient and currently undergoing transplant approval, that the transplant was worth it and he was glad for the extra time it gave him. He had the transplant three years ago.
Please remember Albert in your thoughts. Should you wish, a donation to the Cystic Fibrosis Foundation in his name would be appreciated.

His cartoon web page has been updated as a memorial site. You can see it here.

Many friends have left touching notes at his Facebook page as well.

Another trip to the ‘Burgh

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We’re back from another trip to Pittsburgh. This was the first follow-up visit after Al’s transplant. He had labwork and a clinic visit yesterday and a bronchoscopy today.

We left Thursday morning about 7am and arrived in time for his appointments in the afternoon, then stayed one more night at the Neville Family House. The bronch was the only thing to do today and was an outpatient proceedure, so we were free to leave by about 5pm.

It was done under mild sedation, so there was some observation time before we could leave. The photos here are Al having his first food after being NPO since last night. He really felt okay and was glad to get the sandwich. They wanted to get a lot of fluids into him, so he had some cranberry juice and a can of Pepsi.

We noticed they have a new can design that we haven’t seen at home yet.

Al has been cleared to drive, but with the sedation still wearing off, I drove home tonight. He’s free to drive himself around all he wants to now, and enjoy that until they tell him he can go back to work!

On the Road Again

Just a quick post to say Al has been released from Pittsburgh and can go home!

We’ll be driving home this afternoon as soon as we can get checked out and packed up.

We’ll be home well in time for Thanksgiving!

One Month and Counting

I can’t believe it, but the one month anniversary of Al’s Transplant is here. It sure has gone by fast.

Al visited the Doctors on Monday and had a couple lab tests done. He’s having another blood test drawn tomorrow and if all looks well, they are going to consider letting him go home to Lockport.

We are planning on a quick day trip to Lockport for Thanksgiving (going AWOL) but may not need to resort to that, now. Continue Reading…